BENJAMIN (BEN)

Hi there! My name is Micskó Benjámin. I was born on 2020.02.20, to the great joy of my parents. I just turned 4 years old. I am a wonderful, cheerful, curious, ever-moving little boy. In kindergarten, grapes are my sign. The end of last year took our life in a completely new direction. My mother was bothered by the fact that I still can’t jump, my movements are a bit clumsy, I tiptoe a lot and she was afraid that I would be ostracized and made fun of, so we set off and on December 13th, through developmental gymnastics-physiotherapist-family doctor-neurologist, it turned out that I have a severe, currently incurable Duchenne muscular dystrophy. This means that due to a genetic defect, my body not only does not produce the protein called dystrophin, which is necessary for muscle building, but it also insidiously breaks down my existing muscles. Unfortunately, this could mean that I will be in a wheelchair before I turn 10, and then on a ventilator due to the involvement of my respiratory muscles. The average age is 26. The gene therapy developed in America costs 1.3 billion HUF = 3.3 million USD. My parents would like to ask for people's help in this so that this money can somehow be collected for me. Many children in America have already received the therapy, and the results are very encouraging, both in terms of motor development and laboratory values. I ask you to tell your friends about me, so that my story can reach many people and I have more chances of recovery! Thank you very much for all your help!" Thank you for supporting us in achieving our goal, so that Ben has a chance to receive treatment in time. VERIFY IT THE TWITTER LINK